Living with Chiari- Impending Surgery

It’s been a while since I’ve updated about what is going on with my Chiari situation. We have decided to go for the surgery with Dr. Mapstone (the only one I wrote about). I am going to be having a Sub-Occipital Decompression on January 11. I will be in the hospital for 5 to 6 days.  So I’m either coming home Sunday the 16th or Monday the 17th.

On November 30th, I had my 4th MRI in November.  Dr. M wanted to see if I had a tethered Spinal cord, which would change a few things he did during surgery.  I do not have one, for that we are grateful.  I also had my first CT scan and some X-rays taken to see if I had a weak neck, which would also change the way the surgery went.  I do not, so we are good to go.

December has been an oddly quite month compared to January, but we do have it scheduled and are getting things ready to go.  People keep asking me what they can do to help, and I honestly have no idea what to tell them.  For the first 3 weeks, I’ll probably need people to take Spencer so the person with me can take help me without having to fight Spencer to do it.  We really don’t know what we are going to need.  It’s hard to tell from this side of things.

I have a friend taking Spencer the first 3 days after the surgery (day and night) while Adam is staying at the hospital with me.  Then Spencer’s G’ma and G’pa H are going to take him over the weekend.  We’re hoping that I get to go home on Sunday, but either way the friend that is taking him Monday knows it could be an all day thing.

Everyday that first week I’m home, Spencer is going to play at a different friend’s house every morning.  Thank you to all my friends who are willing to let my little boy come play.

One thought on “Living with Chiari- Impending Surgery”

  1. That’s soon! I’m glad for you. That’s wonderful you will have lots of help. Yay! Have a Merry Christmas! We love and miss you!!


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